A Guide for Lewy Body Dementia Caregivers: Caring with Compassion is a daughter’s heartbreaking yet hopeful account of her secondary caregiving journey for her mother who has Lewy Body Dementia (LBD).
This compassion guidebook is a friendly and practical companion for helping those affected by LBD and other memory-related diseases. The author offers guidance about coping with the strain of being a caregiver and the importance of self-compassion as well as compassion, whilst on the journey. She uses her personal experience to touch on relatable subjects associated with memory loss such as object misplacement, visual changes, family gatherings, hospital visits, respite care, memory care and anticipatory grief. The book includes an introductory chapter on the science behind LBD, by an internationally renowned behavioral neurologist. It discusses the core symptoms and latest research, to ground the personal experiences in science. Each following chapter contains a lesson learned and is a bite sized length, so busy caregivers can read as time allows.
This is essential reading for those caring for someone with LBD to help understand the realities of this disease and to support them along the way.
Foreword Preface Acknowledgements PART 1: THE SCIENCE Bruce L. Miller Chapter 1: What Is Lewy Body Dementia? PART 2: THE EXPERIENCE Kimberly Pellicore Chapter 2: The Brain Can Be as Beautiful as It Is Dangerous Chapter 3: Control Is Only an Illusion Chapter 4: To Be Scared Is Okay, To Be Absent Is Not Chapter 5: Your Name Is Not Important Chapter 6: Music Can Be Healing Chapter 7: Expect Visual Changes Chapter 8: Embrace Love and Ditch Logic Chapter 9: Be Proactive Because Things Will Go Missing Chapter 10: Home Is Where the Heart Is Chapter 11: Changes May Be Needed Chapter 12: The Effects of Changing Your Loved One's Location Chapter 13: Holidays and Gatherings Chapter 14: A Word of Caution About Hospital Visits Chapter 15: Love Your Person as They Are Chapter 16: There Is No Tired Like Caregiver Tired Chapter 17: Friends and Community Are Lifelines Chapter 18: Protecting Your Loved One and Yourself Chapter 19: The Importance of Elder Law Attorneys Chapter 20: Know What Circumstances Call for Professional Help Chapter 21: Home and Respite Care Chapter 22: Making the Move to Memory Care Chapter 23: Visiting Memory Care Chapter 24: Anticipatory Grief Chapter 25: Tomorrow Is Not Guaranteed Chapter 26: You Will Not Be the Same Person Chapter 27: When The End Is Near Chapter 28: Life Is Meant to Be Lived Chapter 29: Finding the Way Through Loss Chapter 30: Epilogue
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