Despite increasing global respect for disability rights since the 2008 entry into force of the UN Convention on the Rights of Persons with Disabilities (CRPD), the equal right to live in the world for disabled people continues to be undermined. This undermining stems from a range of factors, not least the selective prevention and termination of disabled lives, along with long-standing barriers to life-sustaining care, including restricted access to controlled substances and experimental treatment. Investigating the problem of disability discrimination at the margins of life and death, Tony Bogdanoski draws on a range of materials, including international human rights law, reports of UN treaty monitoring bodies and special rapporteurs, and laws largely from the US, UK, and Canada to explore how selective reproduction, assisted dying, and drug control impact struggles for disability equality. His insights are broad in consequence, spanning the fields of disability studies, human rights, law, and bioethics.
Introduction: disability equality at the limits of life and law; 1. Making sense of disability and ableism; 2. Preventing the life of ableism or preventing disabled lives? Disability and selective abortion; 3. Screening out or expanding disabled futures? Disability and assisted reproduction; 4. Right to die, wrong to live? Disability and rights to refuse and request life-sustaining treatment and care; 5. Ending the life of ableism or ending disabled lives? Disability and medically assisted dying; 6. Regulating pain or painful regulation? Disability and drug control; 7. Is the right to try right? Disability and access to experimental treatment; Conclusion: writing off disabled lives or disability rights?; Select bibliography; Index.
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