Palliative and hospice care is a specialty that is constantly evolving alongside the needs of its patients. Practitioners must navigate a rapidly growing field to best advocate for and deliver high quality primary and specialty palliative care to persons and families of those living with serious illness. The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. This new edition of the textbook brings together more than 150 nursing experts to help answer real-world questions around the physical, psychological, social, and spiritual needs pertinent to a successful palliative care team. Organized within 9 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond.
This sixth edition of The Oxford Textbook of Palliative Nursing mirrors developments in Palliative Care, including several new chapters to support the delivery of palliative care to diverse populations. These chapters explore care for patients living with pulmonary, cardiac, liver, renal, and hematologic diseases, as well as chapters on health inequalities, LGBTQ+ communities, rural communities, and care of those with substance use disorders and serious mental illness. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatrics. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.
Acknowledgments
Preface
Betty R. Ferrell & Judith Paice
Part I: General Principles
Chapter 1: Introduction to Palliative Care
Tara A. Albrecht, Heather Coats, & Vanessa Battista
Chapter 2: Role of Nursing in Palliative Care
Michelle Webb
Chapter 3: Public Policy for Palliative Care
Marian Grant
Chapter 4: Principles of Patient and Family Assessment
Shannon L. Storey
Chapter 5: Palliative Nursing Communication
Constance Dahlin & Janice Linton
Chapter 6: Advance Care Planning
Shigeko Izumi
Chapter 7: Value Based Care
Rory B. Farrand & Aparna Gupta
Chapter 8: Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care
Rebekah Malloy, Jessica Bullington, Catherine Rogers, & Adrienne Norquist
Chapter 9: Enhancing Team Effectiveness
Katrina Bezak & Kimberly Chow
Chapter 10: Fatigue
Edith O>'Neil-Page, Grace E. Dean, & Paula R. Anderson
Part II: Symptom Assessment and Management in Adult and Older Adult Populations
Chapter 11: Pain Management
Judith A. Paice & Martin Galligan
Chapter 12: Dyspnoea and Cough
DorAnne Donesky, Susie McDevitt, & Rebecca Disler
Chapter 13: Anorexia and Cachexia
Elizabeth E. Schack & Elizabeth Capano
Chapter 14: Nausea and Vomiting
David Collett
Chapter 15: Dysphagia, Hiccups, and Other Oral Symptoms
Rachel Klinedinst, Brenna McCarty, & Barton Bobb
Chapter 16: Bowel Management: Constipation, Obstruction, Diarrhea, and Ascites
Serena Snow & Cameron Jennings
Chapter 17: Medically Administered Nutrition and Hydration
Jennifer A. Tschanz & Carmen N. Spalding
Chapter 18: Urinary Tract Disorders in Palliative Care
Susan D. Bruce
Chapter 19: Lymphedema Management
Mei R. Fu, Charles P. Tilley, Rubén Martín Payo, & Catherine S. Finlayson
Chapter 20: Palliative Wound, Ostomy, and Continence Care
Charles P. Tilley, Kim Cavallito, Lindsay Alvarez, & Mei R. Fu
Chapter 21: Pruritus, Fever, and Sweats
Angel Smothers, Amanda Edwards, & Diana Niland
Chapter 22: Neurological Disorders
Lauren Massimo, & Brianna Morgan
Chapter 23: Acute Delirium
Shih-Yin Lin & Donna E. McCabe
Chapter 24: Anxiety and Depression
Katharine Adelstein & Elizabeth Archer-Nanda
Chapter 25: Fatigue
Stephanie Gilbertson-White & Nayung Youn
Chapter 26: Insomnia
Patricia Carter
Chapter 27: Sedation for Refractory Symptoms
Chandana Banerjee & Bonnie Freeman
Part III: Psychosocial and Spiritual Care Across Lifespan
Chapter 28: Cultural Considerations in Palliative Care
Carrie L. Cormack & Aminah Fraser-Rahim
Chapter 29: Supporting Families and Family Caregivers in Palliative Care
Tamryn F. Gray & J. Nicholas Dionne-Odom
Chapter 30: Hope and Meaning in Illness
Anessa M. Foxwell & Darcy Alimenti
Chapter 31: Sexuality and Sexual Function in Serious Illness
Christina M. Wilson & Marloe V. Esch
Chapter 32: Ethical Considerations in Palliative Care
Phyllis B. Whitehead & Mark G. Swope
Chapter 33: Addressing Spiritual, Religious, and Existential Needs in Palliative Care
Elizabeth Johnston Taylor & William E. Rosa
Part IV: Pediatric Palliative Care
Chapter 34: Pediatric Pain
Juliana H. O'Brien & Gina Santucci
Chapter 35: Symptom Management in Pediatric Palliative Care
Camara van Breemen & Nadine Lusney
Chapter 36: Values and Perspectives Influencing Goals of Care and Decision Making in Pediatric Palliative Care: Leading through Uncertainty
Christina McDaniel & Jordan M. Desai
Chapter 37: Communication Components for Determining Goals of Care and Advance Care Planning in Pediatric Palliative Care
Deborah Lafond & Kathy Perko
Chapter 38: Ethical Considerations in Pediatric Palliative Care
Hilary Carroll McGuire & Nicole Fernandez
Chapter 39: Pediatric Spiritual Assessment and Care
Dianne Richoux & Judy Zeringue
Chapter 40: Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery Unit
Cheryl Ann Thaxton, Kathleen Ellis, & Andrea Biondi
Chapter 41: Considerations for Adolescents in Pediatric Palliative Care
Lauren Greco & Faith Kinnear
Chapter 42: Pediatric Hospice Perspectives
Alice Bass & Rebecca Turner
Chapter 43: Nursing Care for the Pediatric Patient at the End-of-Life
Jenna Freitas & Chelsea Heneghan
Chapter 44: Grief and Bereavement in Perinatal and Pediatric Palliative Care
Kathie Kobler, Rana Limbo, & Betty Davies
Part V: Issues in Populations of the Seriously Ill
Chapter 45: Pulmonary Palliative Care
Patricia A. Maani-Fogelman & Jennifer Wescoe-Singley
Chapter 46: Palliative Care in Heart Failure
Rachel D. Wells, Avery C. Bechthold, Keith M. Swetz, & J. Nicholas Dionne-Odom
Chapter 47: Palliative Care for People Living with HIV
Jacquelyn Slomka
Chapter 48: Palliative Approaches to Dementia Care
Tatiana Sadak
Chapter 49: Palliative Care for Persons with Liver Cirrhosis and Their Family Caregivers
Louise Babikow, Christopher D. Woodrell, & Lissi Hansen
Chapter 50: Palliative Care for Persons Living with End-Stage Kidney Disease
Kate Sciacca & Marissa Finger
Chapter 51: Palliative Care for Persons Living with a Hematologic Malignancy
Ashley Leak Bryant, Lorinda A. Coombs, Samantha Mayo, Argin Malakian, & Tara Albrecht
Chapter 52: Palliative Care for Persons Living with Cancer
Denice R. Economou, Alissa A. Ulanday, & Eden R. Brauer
Part VI: Care Near the End of Life
Chapter 53: Urgent Syndromes at the End of Life
Christina Feindt & Kelli Gershon
Chapter 54: Sedation for Refractory Symptoms
Sandra Perrotta
Chapter 55: Withdrawal or Cessation of Life-Sustaining Therapies: Mechanical Ventilation, Hemodialysis, Cardiac Devices
Margaret L. Campbell, Alvin H. Moss, & Sarah E. Schroeder
Chapter 56: Palliative Care and Requests for Assistance in Dying
Kaveri Roy & Sarah Rossmassler
Chapter 57: Planning for Death
Reiko Asano
Chapter 58: Grief and Bereavement
Inge Corless
Part VII: Mode of Palliative Care Delivery
Chapter 59: Hospice and Community-Based Palliative Care
Karen Hyden, Maura Lipp, & Tammy Stokes
Chapter 60: Telehealth, Telephonic Care, and Remote Patient Monitoring
Laraine Ann Chiu, Jennifer Curtis, & Inez Brandon
Chapter 61: Palliative Care Nursing in the Outpatient Setting
Nancy A. Robertson & Ami K. Goodnough
Chapter 62: Long-term Care
Melissa McClean & Joan G. Carpenter
Chapter 63: Palliative Care in the Emergency Department
Rebecca Wright & Benjamin Roberts
Chapter 64: Hospital-Based Palliative Care
Barbara Reville & Anessa M. Foxwell
Chapter 65: The Intensive Care Unit
Jennifer L. McAdam, Céline Gélinas, & Kathleen Turner
Part VIII: Considerations for Person and Family-Centered Palliative Care
Chapter 66: Addressing Health Inequalities, Social Determinants of Health, and Underrepresented Individuals in Palliative Care
Binu Koirala, Rebecca Wright, Patricia M. Davidson, Marlena C. Fisher, Katie E. Nelson, Benjamin Roberts, Danetta H. Sloan, & David S. Wu
Chapter 67: Affirmative Palliative Care for LGBTQIA+ Patients and their Families
Kailey E. Roberts, William E. Rosa, Noelle Marie Javier, Pierce DiMauro, Joshua C. Eyer, & Kristin G. Cloyes
Chapter 68: Palliative Care in the Setting of Substance Use Disorder
Peggy Compton, Yu-Ping Chang, & Salimah Meghani
Chapter 69: Palliative Care in the Setting of Serious Mental Illness
Lindsey C. Wright
Chapter 70: Rural Palliative Care
Richard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Chunhong Xiao, & Marie A. Bakitas
Chapter 71: Palliative Care for Older Adults
Laura Moreines & Lauren Hunt
Chapter 72: Global Palliative Care in Low- and Middle-Income Countries
Virginia LeBaron, Thuý Ly Nguyên, & Usha Thapa
Part IX: Special Considerations for Palliative Care Nurses
Chapter 73: Occupational Stress, Burnout, and Self-Care in Palliative Nursing
Erica Frechman & Patricia Wright
Chapter 74: Palliative Care and Social Media
Dana Hansen & Amy Petrinec
Chapter 75: Career Advancement in Palliative Care
Katherine Stackhouse
Chapter 76: Nursing Education
Andra Davis & Megan Lippe
Chapter 77: Nursing Research
Micah A. Skeens, Amy R. Newman, & Kathleen E. Montgomery
Chapter 78: Developing and Implementing Quality Improvement Programs Across Settings
Sean M. Reed
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