This book contains three Open Access chapters.
Reframing Qualitative Research Ethics explores contemporary challenges in qualitative research ethics and generates proposals for reforming ethics review based on researchers’ experience on the ground to support innovative qualitative research in the future.
Following an introduction informed by the historical trajectory of research ethics, this volume explores some of the ethical concerns that researchers have encountered during fieldwork for their research, considers how both they and their ethics committees framed ethical issues, describes how these were managed, and reflects on what we can learn from their experiences. Granular case-studies with a focus on innovative methodologies are offered alongside reflections that go beyond the well-rehearsed binaries of oppositional debates about research ethics review. Researchers with extensive experience of research ethics review make some broader proposals for change. These include a proposal for discipline-based research ethics review, a call to broaden out ethical issues to encompass wider frameworks of research integrity, and an agenda for organisations to better support ethics and integrity in qualitative research.
A timely return to the nuances of researchers’ experience on the ground featuring contributors who are uniquely well-placed to bridge the divide that is commonly seen between researchers and the views of research ethics committees, this is a pathbreaking resource for a new generation of qualitative researchers and members of the research ethics community.
Introduction
Chapter 1. Qualitative Research Ethics: Changing Contexts and New Methodologies; Helen Busby
Reimagining Qualitative Research Ethics: Narratives and Case Studies
Chapter 2. Ethics Review and YouTube Research With Fertility Preservation Vloggers; Rhonda M. Shaw
Chapter 3. Peer Researchers in Qualitative Research on Homelessness and Mental Health: A Reflexive Journey From Data Validity to Relations of Ethical Labour; Nienke Boesveldt OPEN ACCESS
Chapter 4. Informed Consent in Qualitative Research: Lessons on Relationality From a Technologically Dense Classroom; Fride Haram Klykken
Chapter 5. Ethical Considerations During Photo-Eliciting Trajectories With Migrantised Women Focused on ‘Gender Empowerment’ in Civil Society Organisations; Lore Van Praag, Amal Miri, Kaya Klaver, and Neda Deneva OPEN ACCESS
Chapter 6. Autoethnography: An Ethics Challenge for Researchers and Reviewers; Nicole Brown
Chapter 7. Whose Ethics Am I Concerned With? Perspectives From Qualitative Research With Retired Educators in Botswana; Hildah L. Mokgolodi
Chapter 8. Ethical Practice in Qualitative Research Involving User-Generated Online Content: Questions, Challenges and Opportunities; Helena Webb
Chapter 9. The Ethics of Using GPS in Qualitative Research With War-Affected Families: Experiences of Mobility From Palestine, Lebanon, and Canada; Bree Akesson and Karen Frensch
Reframing Qualitative Research Ethics: Proposals for Change
Chapter 10. The Case for Discipline-Specific Ethics: A View From Social Anthropology; Michael Herzfeld
Chapter 11. Improving Formalised Ethics Review: Field-Sensitivity, Bundles of Usership and Devolution; Margaret Sleeboom-Faulkner
Chapter 12. Advancing Indigenous Health Partnerships: Ethical Approaches to Qualitative Research and Health Systems Improvements; Lloy Wylie, Joyla Furlano, and Alana Kehoe
Chapter 13. Improving the Ethics Review of Qualitative Health Research Through Increased Collaboration Between Research Ethics Committees, Researchers and Research Participants; Sarah Potthoff and Anke Erdmann OPEN ACCESS
Chapter 14. Research Integrity and Qualitative Research: Tackling and Researching Unethical Practices at the Top; Nina Peršak
Chapter 15. Qualitative Research Ethics: An Agenda for Researchers and Research Organisations; Helen Busby and Mark Israel
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