Clinical ethics consultants navigate dilemmas across patient care, public health, healthcare policy, and professional guidelines with issues spanning from the beginning to the end of life, complex discharges, employment of novel technologies, and visitation restrictions. The second edition relays the narratives of fraught, complex consultations through richly detailed cases exploring the ethical reasoning, professional issues, and the emotional aspects of these impossibly difficult scenarios. Describing the affective aspects of ethics consultations, authors highlight the lasting effects of these cases on their practices and reflect candidly on evolving professional practice as well as contemporary concerns and innovations, with attention to equity and inclusivity. Featuring many new chapters, cases are grouped together by theme to aid teaching, discussion and professional growth. For clinicians, bioethicists and ethics committee members with an interest in the choices made in real-life medical dilemmas as well as the emotional cost to those working to improve the situations.
Introduction: live and learn: courage, honesty, and vulnerability; Part I. Starting at the Beginning: Prenatal and Neonatal Issues: 1. Quality of life – and of ethics consultation – in the NICU Robert C. Macauley and Robert R. Orr; 2. When a baby dies in pain Thomas R. McCormick and David Woodrum; 3. But how can we choose? Richard M. Zaner; 4. Maternal-fetal surgery and the “profoundest questions in ethics” Mark J. Bliton; Commentary 1. Reflections on Part I Lucia D. Wocial; Part II. The Most Vulnerable of Us: Pediatrics: 5. She was the life of the party Douglas S. Diekema; 6. The sound of chains Jeffrey Spike; 7. Susie's voice Rosa Lynn Pinkus, Stella L. Smetanka, and Nathan A. Kottkamp; 8. Access to an infant's family: lingering effects of not talking with parents D. Micah Hester; Commentary 2. Reflections on Part II Nneka Sederstrom; Part III. Diversity of Desires and Limits of Liberty: Psychiatric and Psychological Issues: 9. Helping staff help a “hateful” patient: The case of TJ Joy Skeel and Kristi Williams; 10. Ulysses contract Barbara Daly and Cynthia Griggins; 11. Misjudging needs Paul J. Ford; 12. When the patient refuses to eat Debra Craig and Gerald R. Winslow; Commentary 3. Reflections on Part III Maya Scott; Part IV. Withholding Therapy with a Twist: 13. Listening to the husband Ellen W. Bernal; 14. You're the ethicist; I'm just the surgeon Joseph P. DeMarco and Paul J. Ford; 15. Haunted by a good outcome: the case of Sister Jane George J. Agich; 16. Is a broken jaw a terminal condition Stuart G. Finder; Commentary 4. Reflections on Part IV Crystal Brown; Part V. The Unspeakable/Unassailable: Religious and Cultural Beliefs: 17. Adolescent pregnancy, confidentiality, and culture Donald Brunquell; 18. 'Tanya, the one with Jonathan's kidney': a living unrelated donor case of church associates Tarris D. Rosell; 19. Futility, Islam, and death Kathryn L. Weise; 20. Suffering as God's will Kathrin Ohnsorge and Paul J. Ford; Commentary 5: Reflections on Part V: The Unspeakable/ Unassailable: Religious and Cultural Beliefs Mahwish Ahmad; Part VI. Human Guinea Pigs and Miracles: Clinical Innovations and Unorthodox Treatment: 21. Amputate my arm, please. I don't want it anymore Denise M. Dudzinski; 22. Feuding surrogates, herbal therapies, and a dying patient Alissa Hurwitz Swota; 23. One way out: destination therapy by default Alice Chang and Denise M. Dudzinski; 24. Altruistic organ donation: Credible? Acceptable? Ronald B. Miller; Commentary 6: Reflections on Part VI: Human Guinea Pigs and Miracles: Clinical Innovations and Unorthodox Treatment Kaarkuzhali B. Krishnamurthy; Part VII. The Big Picture: Organizational Issues: 25. It's not my responsibility Mary Beth Foglia and Robert A. Pearlman; 26. Intra-operative exposure to sporadic Creutzfeldt-Jakob disease: to disclose or not to disclose Joel Potash; 27. Why do we have to discharge this patient? Sarah E. Shannon; 28. Who's that sleeping in my bed? An institutional response to an organizational ethics problem Daryl Pullman, Rick Singleton, and Janet Templeton; Commentary 7: Reflections on Part VII Ruchika Mishra; Conclusions, educational activities, and references Denise M. Dudzinski and Paul J. Ford. Index
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