Part of the "What Do I Do Now: Palliative Care" series, Clinical and Ethical Dilemmas in Palliative and End-of-Life Care bridges the gap between the clear, logical, and harmonious clinical world of textbooks and the chaotic, turbulent, resource-constrained, and often unpredictable world of everyday practice. Each chapter begins with a case and is followed by a diagnosis, explanation of next steps, and rationale for decision-making by experts in the field, mimicking the kind of "curbside consult" that occurs between an experienced clinician and someone new to the field.
Tackling dilemmas related to patients, families, healthcare professionals, and the healthcare system, this book comprehensively helps readers learn to apply practical knowledge in challenging circumstances-and often with incomplete information-to achieve clinical competency. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"
Preface
Foreword
Contributors List
Part I: Dilemmas Related to Patients
Chapter 3: A Choice of Comfort Feeding
Wesley Boyette & M. Jennifer Cheng
Chapter 4: Patients Seeking Alternative Treatments for Cancer Pain
Steven Mach & Salahadin Abdi
Chapter 6: Delivering Difficult News as a Covering Provider
Scott Ian Borison
Chapter 8: To Pray or Not to Pray: Is that the Question?
Marta Illueca
Chapter 9: My Patient with Substance Use Disorder is in Acute Sickle Cell Pain Crisis
Baraa O. Tayeb & Antje M. Barreveld
Chapter 10: My Dying Patient Receiving Opioids Has a Respiratory Rate of 6
Baraa O. Tayeb & Antje M. Barreveld
Chapter 11: Video Gaming and Virtual Reality in Pediatrics
Elizabeth Pasternak & Pamela Ressler
Chapter 12: Native American Spirituality and Healing
Marta Illueca
Chapter 27: Dying Alone
Sharon Kim
Part II: Dilemmas Related to Families
Chapter 1: Navigating Familial Conflict Regarding Information Sharing
Nafiisah B.M.H. Rajabalee & Scott Ian Borison
Chapter 5: Dis/Continuing Transfusions in a 2 Year Old Dying of Leukemia
Elizabeth Pasternak & Pamela Ressler
Chapter 13: Managing Family Conflict
Betty R. Ferrell
Chapter 16: Dilemmas Related to Families
Anna Barreiro Albán & Beth B. Hogans
Chapter 20: Complicated Grief
Zhu Wang & Salahadin Abdi
Part III: Dilemmas Related to Healthcare Professionals
Chapter 23: Moral Distress: My Patient is Suffering and "We Can't Keep Torturing Them"
Anthony Eidelman & Regina M. Fink
Chapter 24: Work-Nonwork Life Fit: Tensions for Healthcare Clinicians
Emily P. Guinee, Angela K.M. Lipshutz, M. Jennifer Cheng, & Deborah J. Snyder
Chapter 25: Burnout and Resilience
Jennifer Winegarden & Ylisabyth Bradshaw
Chapter 26: Planning and Facing Retirement
Daniel B. Carr & Stephen Gullo
Part IV: Dilemmas Related to the Healthcare System
Chapter 14: Balancing Opioid Benefit and Risk for Subacute or Chronic Noncancer Pain
Scott A. Strassels & Daniel B. Carr
Chapter 19: The Emerging Role of Independent Patient Advocates
Shiella Dowlatshahi
Chapter 21: Managing Outpatient Workplace Violence
Pragya B. Gupta & Daniel B. Carr
Chapter 22: Maladaptive Team Dynamics
Moe Norton-Westbrook, Sylvia Christie, & Constance Dahlin
Chapter 28: Allocation of Scarce Resources
Justin Price
Chapter 29: Introducing Novel Treatments: Navigating Institutional Policies
Jennifer Winegarden
Chapter 34: Racial Inequalities in Healthcare
Carmen Renee Green
V: Dilemmas Related to Ethical Issues
Chapter 2: Hydration and Artificial Nutrition at the End of Life
Tamara Vesel & Carol Pilgrim
Chapter 7: Physician Assisted Death (PAD)
Sudha Chandrasekhar
Chapter 15: Decision-Making Around Dialysis Withdrawal
Mary K. Buss & Tamara Vesel
Chapter 17: LGBTQ: to Disclose or Not to Disclose
Gabriel Lutz
Chapter 18: Can Minors Make Major Healthcare Decisions?
Sudha Chandrasekhar
Chapter 30: Surrogate Decision Making
Margaret M. Mahon
Chapter 31: Approaching Palliative Sedation at the End of Life
Abigail Lebovitz & Tamara Vesel
Chapter 32: Advance Care Planning
Nnamdi C. Iwuala & Lauren Shaiova
Chapter 33: Substituted Judgment
Gabriel Lutz
Index
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