A comprehensive revision of a critical resource for school-based professionals tasked with providing care for children’s disability conditions, their social-emotional health, and their educational needs.
The volume of information on health conditions affecting children and adolescents has grown and become more complex over the last several decades, making it a challenge for school-based professionals to support children's learning and growth. Now in its second edition, Health-Related Disorders in Children and Adolescents discusses how school professionals can be effective partners in collaborative care teams for the more than 15 million school-aged children experiencing medical conditions.
With chapters written by experts from a range of disciplines in psychology and featuring the latest genetic research, the work is organized around major body systems. Each chapter systematically covers etiology, symptoms, and outcomes for children with the condition, and recommends science-based interventions school professionals can carry out. This edition emphasizes care coordination among families, and medical, behavioral health, and educational professionals.
Series Foreword
Julia Ogg
Preface
LeAdelle Phelps as transcribed by Melissa Bray
Part I. Introduction
Chapter 1: Introduction to the Second Edition
Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children and Families
Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah
Part II. Blood, Cardiovascular and Circulatory System Disorders
Chapter 3: Overview of Circulatory System Disorders
Jeff Bostwick, Clark R. Bray & Heather Kwolek
Chapter 4: Cardiac Disorders
Stewart W. Ehly & Noel Estrada-Hernandez
Chapter 5: Childhood Leukemia
Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern & Alyssa Perri Elias
Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
Priscilla H. Duong & Hiroko Tanaka
Chapter 7: Hemophilia
Mickey Randolph & Ethan J. Schilling
Chapter 8: Human Immunodeficiency Virus
Tiffany Chenneville & Kamesha Gabbidon
Chapter 9: Noonan Syndrome
Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa Scogin
Chapter 10: Sickle Cell and other Anemias
Linda W. Morse, Melanie C. Morse & Sarah E. Bills
Part III. Central Nervous System Disorders
Chapter 11: Overview of CNS Disorders
Ivette Merced
Chapter 12: Adrenoleukodystrophy
Harvey Switzky, James P. Van Haneghan & Abigail Baxter
Chapter 13: Agenesis of the Corpus Callosum
Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
Chapter 14: Angelman Syndrome
Sara S. Frye & Allison Fairchild
Chapter 15: Autism
Christine L. Cole & Alana Telesford
Chapter 16: Cerebral Palsy
Sai Sudha Aravala, Adeline Bray & Karen Cross
Chapter 17: Cri-du-Chat
Phyllis S. Ohr
Chapter 18: Down Syndrome
Nicholas W. Gelbar
Chapter 19: Epilepsy
Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
Chapter 20: Hereditary Ataxia
Taylor-Kristen Myers
Chapter 21: Mitochondrial Disorders
Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
Chapter 22: PANDAS/PANS
Kandace M. Hoppin & Patricia Rice Doran
Chapter 23: Prader-Willi Syndrome
Moira Wendel & Julia Ogg
Chapter 24: Rett Syndrome
Nicholas W. Gelbar
Chapter 25: Spina Bifida
Fay Roseman & Agnes Shine
Chapter 26: Williams Syndrome
Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg
Part IV. Digestive System Disorders
Chapter 27: Overview of Digestive System Disorders
Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
Chapter 28: Celiac Disease
Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
Chapter 29: Hirschsprung's Disease
Craig L. Frisby
Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative Colitis
Stevie Puckett-Perez & Chelsea Vaughan
Chapter 31: Phenylketonuria
Julia Ogg & Daniel V. Strissel
Part V. Endocrine & Reproductive System Disorders
Chapter 32: Overview of Endocrine & Reproductive System Disorders
Cindy Chin, Graciela E. Silva & Mark Wheeler
Chapter 33: Conditions Associated with Growth
David E. Sandberg & Kristina I. Suorsa Johnson
Chapter 34: Congenital Adrenal Hyperplasia
Allison Fairchild & Madison Preece
Chapter 35: Klinefelter Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 36: Thyroid Disorders
Samantha Coyle & Brooke Stettler
Chapter 37: Turner Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 38: Type 1 Diabetes
Natalie A. Larez & Michelle M. Perfect
Chapter 39: Type 2 Diabetes
Stihlyn Chamberlain & Savina Maria Bello
Part VI. Respiratory System Disorders
Chapter 40: Overview of Respiratory System Disorders
Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
Chapter 41: Asthma
Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
Chapter 42: Cystic Fibrosis
Jeanette Smith Phoenix & Keiko Aoyagi
Chapter 43: Cytomegalovirus
Maryann Santos
Chapter 44: Sarcoidosis
Adeline Bray, Sar Aravala & Craig Schramm
Part VII. Musculoskeletal Disorders
Chapter 45: Overview of Musculoskeletal Disorders
Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
Chapter 46: Achondroplasia
Cynthia A. Riccio & Anita Sohn McCormick
Chapter 47: Charcot Marie Tooth Disease
Jennifer Tucker & Meghan Nickels
Chapter 48: Juvenile Idiopathic Arthritis
Rebecca J. Tipton & Eric L. Robinson
Chapter 49: Marfan Syndrome
Brittany A. Dale & David E. McIntosh
Chapter 50: Muscular Dystrophies
Jennifer Tucker & Megan Jeune
Chapter 51: Osteogenesis Imperfecta
Kelly N. Clark & Christine K. Malecki
Chapter 52: Sotos Syndrome
Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter, Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon, & Adeline M. Bray
Part VIII. Mixed/Multisystem Disorders
Chapter 53: Overview of Multisystem Disorders
Cynthia A. Riccio
Chapter 54: CHARGE Syndrome
Timothy S. Hartshorne & Lillian J. Slavin
Chapter 55: Cornelia de Lange Syndrome
Emily M. Jimenez & Cynthia A. Riccio
Chapter 56: Fragile X Syndrome
Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina Petrullo
Chapter 57: Lysosomal Storage Disorders
Allison Fairchild & Melina Islas
Chapter 58: Mucopolysaccharide Disorders
Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
Chapter 59: Neurofibromatosis
Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
Chapter 60: Pediatric Cancer
Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
Chapter 61: Smith-Magenis Syndrome
James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
Chapter 62: Sturge-Weber Syndrome
Emily M. Jimenez & George W. Hynd
Chapter 63: Tuberous Sclerosis Complex
Cynthia A. Riccio & Huilin Linda Sun
Chapter 64: Conclusion: Looking Back and Forward
Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio Appendix: Checklist for Developing Plans for Students with Health-Related Conditions
Index
About the Editors
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